MargaretAnn
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During the pre diagnosis period for Myasthenia Gravis, I felt sluggish and weary often. I just told myself these symptoms were simply due to the aging process. However, post diagnosis after beginning to take mestinon, my energy level improved drastically; about 100%! I am now getting Soliris infusions bi-monthly. I am feeling much better. I get sleepy earlier, sleep harder and longer than I used to with my body using sleep for self-healing and recuperation. Hopefully, in the future, I can begin Ultomiris infusions.
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I am able to exercise. I do the elliptical machine 3 times per week, some strength sessions with weights. I also use the mats for core strength exercises. Because I have been active most of my life, I continue to work out. Exercising has been a phenomenal cure for me for many ailments, including disc replacement surgery. I also walk 1-2 times per week. I do find that when I go for walks, I have some balance problems.
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Drinking water from a water bottle. I have to be careful of water leaking from my mouth. My penmanship has become pretty messy also. My fingers are weak and I can’t control the pen as well as I used to.
Swallowing food is more difficult. I have to be careful of biting my lower lip.
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Yep; “lose my balance” problems! I agree it helps to keep a stern sense of humor. When walking with my hubby and I lose my balance, I give him a flirtatious, double eye arch. We both chuckle and keep walking! When vertigo hits, I force my eyes to stare. And finally, I find staying active at the gym, elliptic, weight machines, and outdoor walking keeps any weakness attacks minimal. I am also taking mestinon and getting Soliris infusions (real lifesavers). Thank you all for your input; helps me feel “normal”.
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Good advice! I will begin to use a journal to try to find out what causes my balance problems when I walk.
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Me too!