Forum Replies Created

  • Sharon White

    Member
    May 24, 2023 at 4:05 pm in reply to: Botox, Fillers, and Cosmetic Procedures With Myasthenia Gravis

    I have ocular myasthenia gravis, blepharospasms and dystonic tremors. The spasms and myasthenia seem to fight against each other. I do get Botox every 3 months that really controls the spasms. I have glasses that have a special made crutch in them that holds my eyelids open. (World optics) has been modifying glasses for over 50 years adding a crutch to them. It works. Are they painful? Yes. Does it take a while to get use to them? Yes. Do they work? Yes! I need both Botox to control the spasms and take the pressure off my head above my eyes and I also take mestinin and wear these special glasses. I have had ocular myasthenia gravis, for about 15 years.

  • Sharon White

    Member
    March 30, 2022 at 8:28 pm in reply to: D Symptoms of Myasthenia Gravis

    Drooping eyelids, double vision, decreased energy

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