Lynda Klein
Forum Replies Created
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Not sure where you live but you need a new doctor. Try to find one that specializes in MG. I was diagnosed in 2020 and have been on prednisone the majority of that time. Mestinon helped a little in the beginning . I was on IVIG for a little over 2 years. Started at every 4 weeks and then to every 3 weeks. I had to stop the IVIG to join a clinical trial but still on prednisone. I’ve failed cellcept and Imuran due to side effects. I’m now in a phase 2 clinical trial. I won’t know if I’m getting the drug or not until the end of August. But I can tell you that my symptoms are now worse than bei started the trial. I have to decide whether to stay with it or quit and try something else. Wishing you the best but please find another doctor. Im also in the medical field.
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It’s not supposed to be. But, my Dad was diagnosed years ago and I was just diagnosed in 2020. I don’t think it’s been studied enough to make the correlation. But, if autoimmune diseases are in the family it’s more likely that something like this happens. MG can be triggered by a virus.