GregD
Forum Replies Created
-
Terrible! I’m still learning but I am advocating for myself. My wife recently had her 70th birthday…all with recovering from GBS. So her birthday was at my daughter’s house but that involved lots of visitors, heat, sun, no rest. Long story short, I got out of the hospital yesterday after being there after 4 days. Got second round (one week early) of IVIG (X 2 days) and upped my mestonin from 3 per day to 5 -6. Trying to slow down…but need the heat down in Chicago. Keeping a journal and daily mg symptom book to take to the mg (specialty) doc at the end of September.
-
I know this is all so incidental to now what I have…mg…but I used to play the military fife in B flat (fife and drum) and now I cannot produce an embouchure (lip pursing) to still play any Civil War period songs. In short, I am thankful I completed my bucket list item and played at the 150th Gettysburg…good memories.
-
Its a new show every day, but the show isn’t good.
-
Thank You!!
-
Got my first IVIG infusions last Tuesday and Wednesday…I have 2 day infusions booked every month for the next twelve months from the hospital neurologist. Don’t know if that will change after I see another neurologist in September. So far went great, nurses were great…
-
I really didn’t need mg…..but now in the early stages of taking Pyridostigmine and starting ivig infusions this week I am anxious to see if this helps. I wish I could see my new mg neurologist earlier, but that’s 3 months away. Presently have COPD and diabetes caused by past employer as well as a detached retina that didn’t come back right after the operation…so, I often, most likely every day I think if I chose another road to follow two of these conditions would have never happened. But then now throw in mg, this is like throwing boulders in that road that is traveled every day and trying to juggle on how to keep each one under control is a chore in itself.
-
I’m searching for something to relieve stress…I have several hobbies at 73 but don’t know if they work. I started reading more, but the detached retina and surgery to fix it didn’t help much for those efforts. For one, I am anti drama in life and sick of it. In the past 8 years I have been either diagnosed or my conditions have been made worse from COPD, Diabetes, Hypertention and Bronchiectasis all of which my past employer is accountable for (and day in day out I cannot forget this)…..now mg. I am starting my journey with this and trying to learn as much as I can to combat stress, but I don’t know what may be working or not. (This is not only good for my mg condition but inner self as well.) When mg began 2 weeks ago I really didn’t need this…now again searching for these answers. I have seen neurologists in the hospital and am waiting for an appointment with an mg neurology specialist in September which may give me some answers, but still wondering.
-
Mine is my 2013 Jeep Wrangler Sport. It is my bucket list car and I have a decal on the back window identifying my Jeep as my emotional support vehicle. And it is, in Chicago winters I do not stress out with the snow and getting stuck….
-
Within the last 2 weeks was in the hospital for 5 days, learned I have mg. Never heard of it but continue to learn…. On meds, start ivig next week 2 days in a row every month. Being seen by a neurologist but see a mg neurology specialist in September. All kinds of things I’m still learning..I hope I get it back but I cannot get my lip emboushure whereas I used to play the B flat military fife..glad I made it to my bucket list evert..150th Gettysburg reenactment. I hope I can play again some day…
-
Smile has definitely changed…left eye lie droops.
-
Hello…Don’t know how far north…but back in the day while in the IL. National Guard every summer camp we would go to Fort McCoy. I remember Sparta, Tomah and of course LaCrosse. Greg