Myasthenia Gravis News Forums Forums Mental Health and Self-Care How do you deal with stress?

  • James McCay

    Member
    January 23, 2024 at 3:06 pm

    HOW DO I DEAL WITH STRESS??? LMAO

    I HAVE ATYPICAL CONGENITAL GENERAL MYASTHENIA GRAVIS (XL HYPERACTIVE THYMUS GLAND CAUSING WEIRD DIABETES, BLOCKS ALL NEW MEDS SINCE 2009, AND HAVEN’T HAD A COLD/FLU SINCE 2008, ALSO NEVER GOT COVID W/HIGH RISK EXPOSURE-ONE GOOD THING), ALSO DEGENERATIVE DISC DISEASE (6 MASSIVE NECK, LOWER BACK HERNIATED DISCS) AND FIBROMYALGIA. I HAVE NON-STOP BEYOND YOUR UNDERSTANDING EXCRUCIATING PAIN EVERYWHERE 24/7 (NEUROLOGISTS DESCRIBED IT AS WORSE THAN ANY CANCER PAIN OR CHILD BIRTH!!!); ESPECIALLY SINCE THE BIDEN CREW MADE THE CDC/DEA DO THE WRONG 2016 OPIOID GUIDELINES & THREATENING ALL DOCS TO LOWER EVERYONE’S OPIOIDS THAT GAVE ME A LITTLE QUALITY OF LIFE UNTIL 2017. MY PAIN DOC LOWERED MY METHADONE OF 150 MG TWICE A DAY FOR 15-YEARS (FOR PAIN ONLY-I NEVER DID ILLEGAL DRUGS AND NEVER WILL EVEN NOW!) TO 120 MG TWICE A DAY NOW. YET STATES IN MY MONTHLY MEDICAL NOTES “THERE’S ABSOLUTELY NO SIGN OF ADDICTION OR MISUSE.”. WHICH IS WHAT MY PSYCH DOCS (WHO I VOLUNTARILY SAW TO AVOID ANY ADDICTION!) ALSO STATED AFTER 8-YEARS OF WEEKLY/MONTHLY VISITS.

    IT ALL CAME OUT FULL FORCE A FEW MONTHS AFTER PTSD FROM 9/11/01. I LEARNED FOR A FACT IN 2016, I’M SICK BECAUSE MY USELESS FAHERSERVETCAMPLEJEUNE, NC W/THEIR POISONOUS WATER FOR 18-MONTHS (1953-54) WHICH ALTERED HIS DNA AND KILLED HIM FROM KIDNEY CANCER/FAILURE AT AGE 79 IN 2015. THIS ALTERED MY DNA IN THE WOMB. I WAS BORN A TICKING TIME BOMB. I HAD WEIRD MEDICAL ISSUES MY ENTIRE CHILDHOOD, BUT MY MOTHER IGNORED MOST SAYING “IT’S ALL IN YOUR HEAD” & SHE REFUSED TO TAKE ME TO SPECIALISTS WHEN OUR FAMILY DOCTOR TOLD HER TO.

    I WAS RAISED ALONE BY MY MENTALLY ILL/GAMBLING ADDICT- SOCIOPATH/BORDERLINE PERSONALITY MOTHER (DIAGNOSED FINALLY IN 2000 WHEN I TRICKED HER TO SEE A PSYCH FOR 6-MONTHS). SHE HATED ME FROM BIRTH, AS SHE ONLY WANTED A GIRL, SO SHE RAISED ME MOSTLY LIKE A GIRL UNTIL I WAS 10 AND STARTED THINKING FOR MYSELF, BY 13 I WAS IN FULL BLOWN REBELLION. MY DEADBEAT FATHER ABANDONED ME WITH HER AT 18-MONTHS OLD! I SAW HIM ONLY 3-TIMES UNTIL AGE 13.I

    I HAD TO MOVE BACK INTO MY FAMILY HOME IN 2005. MY MOTHER WOULDN’T LET ME LIVE IN THE STREET LEVEL BASEMENT ONE ROOM APARTMENT UNTIL I COULD PROVE I COULD PAY $400 A MONTH RENT (WHEN SOC SEC DISABILITY WAS APRROVED). SO I HAD TO LIVE ON THE STREET (I SLEPT IN MY FREND’S VAN FROM 11P-6M) WHERE I HAD TWO HEART ATTACKS FROM VIOXX IN LATE 2004, AND EARLY 2005. NICE, HUH?

    MY MOTHER STOLE THE $70,000 I HAD LEFT FROM THE $100,000 SETTLEMENT FROM VIOXX IN 2012. SHE LOST IT ALL GAMBLING IN 2-DAYS! THAT MONEY WOULD HAVE LASTED ME 10+ YEARS. IN 2014 SHE FELL ON HER HEAD OUTSIDE AT NIGHT TWO NIGHTS IN A ROW. AFTER THE FIRST FALL I BEGGED THE ER TO KEEP HER FOR A 72-HR PSYCH HOLD, THEY REFUSED. TOLD THE DOC, IF YOU DON’T KEEP HER SHE’S JUST GOING TO FALL LIKE THAT AGAIN! HER 2ND FALL MADE HER CATATONIC (BASICALLY BRAIN DEAD). SHE HAD $200 IN ALL HER BANK ACCOUNTS, SHE TOOK OUT AN $82,000 GAMBLING LOAN ON THE HOUSE 6-MONTHS BEFORE HER FALLS (IT WAS A TERRIBLE PREDATORY LOAN). I GOT STUCK PAYING ALL HER HOUSE BILLS OR I’D BE HOMELESS AGAIN. PLUS PAID $340-$550 A MONTH INTEREST ON HER $82,000 LOAN UNTIL LAST MONTH. TURNS OUT THE PAYMENT WAS SUPPOSED TO GO UP TO $1,100 A MONTH IN DECEMBER. THIS SCUM BANKTOOK THE $1,100 A MONTH OUT OF THE BANK STARTING IN SEPT??? SINCE NOTHING WAS IN MY NAME, I COULDN’T EVEN ASK WHY THEY DID THAT. SO I JUST STOPPED PAYING WHICH MEANS THEY’LL TRY TO TAKE THE HOUSE NOW…

    SO WHAT DO I DO FOR STRESS? BECAUSE MY MOTHER CAUSED ME TO HAVE BAD GENERAL ANXIETY DISORDER SINCE AGE 15, I WAS PUT ON KLONOPIN 26-YEARS AGO AFTER DOZENS OF OTHER PSYCH MEDS & COMBOS DID NOTHING OR MADE ME WORSE! I MEDITATE DAILY ASUCHASICAN. I DO STRETCHING EXERCISES AS MUCH AS MY BODY WILL ALLOW (HARD & DANGEROUS WITH MYASTHENIA GRAVIS).

    MY HOBBY SINCE 1989 HAS BEEN DONATING HUGE AMOUNTS OF SPORTS CARDS/REAL AUTOGRAPHS TO HOSPITALIZED CHILDREN EVERY YEAR FOR 26-CONSECUTIVE YEARS (1989-2015). I ALSO AM A COLLECTABLES EXPERT FROM EVERY ANGLE, BUT WAS NEVER A DEALER FOR PROFIT (I DONATED ALL MY PROFIT). I’VE BEEN FIGHTING FRAUD IN SPORTS CARDS AND AUTOGRAPHS FOR FREE SINCE 1991 AND 1995 RESPECTIVELY. SO I STILL FIGHT AS MUCH FRAUD FOR FREE AS I CAN, ESPECIALLY ON EBAY WHICH HAS BECOME A DUMPING GROUND FOR FRAUDULENT ITEMS AND EBAY COULDN’T CARE LESS AS LONG AS THEY MAKE THEIR MONEY. IT’S DISGUSTING WHAT GRADING COMPANIES (PSA, BGS, SGC+++) AND AUTOGRAPH “AUTHENICATORS” HAVE DONE TO THIS HOBBY. MILLENIALS FELL FOR THEIR CRAP HOOK, LINE, AND SINKER BECAUSE THEY DON’T WANT TO PUT ANY WORK IN TO LEARN…

  • Mama

    Member
    January 24, 2024 at 3:15 pm

    I was diagnosed with MG in August of 2023. I am 79 and a Christian so my first help with stress is my connection to God. I know that He has provided things to help us and I am very much into taking natural supplements instead of medicine, if I can. I have found that Ashwaghanda really helps me with controlling stress. I also have a friend that it helped with depression. Nothing works for everyone, but this has been helpful for me. MG is a journey each day and I am still learning to live with MG. As I read the other day, “I have MG, but MG does not have me.”

  • imbrew1

    Member
    February 4, 2024 at 7:50 pm

    I’ve used an herbal remedy called Adrenal Stability for years. It works great for me, takes the edge off without making me feel like a zombie. Just feel like my old self.

  • amy-cessina

    Member
    February 7, 2024 at 6:28 pm

    Thank you for the herbal remedy suggestions. I tend to let stress get the better of me luckily it doesn’t affect my MG yet. I mostly have a health anxiety as many of you might be able to relate to. I’m usually worried that my MG will get worse or I might get something else. Seems to calm down for a while then something will trigger it back. I suppose that’s how it works just can’t seem to break the cycle.

  • James McCay

    Member
    February 7, 2024 at 6:38 pm

    I meditate, listen to calming nature sounds, practice deep breathing techniques. But how do you deal with stress- stuck in the worst city in the country (NYC) where everything is broken?

    They cut my KLONOPIN dose of ten years (on it 26-years total) in half and that took 8-months to find a Psych NfP I educated enough to give me half dosses. Psychs tried dozens of psych meds in my life and NOTHING worked at all, or only caused bad side effects. It took them 30-years to figure out (with my research) I was born with MYASTHENIA GRAVIS WITH AN XL HYPERACTIVE THYMUS GLAND blocking meds (and 2 other Neuromuscular diseases as a 2nd Generation Camp Lejeune Victim). Then the CDC/DEA broke everything involving controlled substances for people (most over 50, the lowest addiction age range) who need OPIOIDS to have any Quality Of Life at all.

    My Methadone (for extreme pain only) was cut by 25% in the last 7-years (3-times each making my widespread muscle/nerve pain worse) to where barely helps. PLEASE DON’T SUGGEST SOME FLY BY NIGHT MAGIC PAIN CURE (THEY ONLY CAUSED PERMANENT DAMAGE TO ME!) & NONE OF YOU HAVE AN XL HYPERACTIVE THYMUS GLAND (not a thymoma) THAT ONLY ONE NEUROLOGIST (out of dozens) COULD EXPLAIN- so how can you? The exact same Pain Management doctor of 12-years told me “150 mg twice a day is your optimum lowest dose” who prescribed up to 180 mg twice a day. I told him to lower it back down to 150 mg because 180 mg did not help any more. Then in 2016-17 the CDC/DEA stuck it’s noses where they didn’t belong and made all doctors paranoid to prescribe opioids no matter how many CHRONIC INTRACTABLE PAIN patients they caused to die. THESE ARE WELL VETTED FACTS!

    Yet FENTATNYL keeps pouring in through the Mexican totally open border (thanks to the broken Biden administration). Can anyone explain the logic of this?

    If that’s not enough stress, the NYC DEPT OF BUILDINGS (DOB) “QUALITY OF LIFE UNIT” after my living here on/off since birth 57-years ago (and 20-YRS since I became so disabled); say my 1st Floor apartment is an “illegal basement dwelling” and it’s my responsibility to remove all of the “conversions” that made it illegal; plumbing, bed, furniture+ (which has all been here since I was 5-YRs old or way before). This 1st Floor is legal according to the DOB WEBSITE ITSELF??? it’s 100% above the curb, has several windows & has two easily accessible exits with my disabilities. My Assemblyman is on my side, so is Queens Legal Services, yet I’ve been fighting this to no avail for a month now. If not ‘fixed” by 2/20/24 (they say they give you 60-days, they gave me 40) I could be homeless… yet the illegals in NYC get better food than me, free better housing, clothes, etc. Then 6+ of them viciously beat up two police officers in the light of day in NYC, and give TV cameras the middle finger??? They were released without bail!

    James M

  • jonathan-a

    Member
    February 8, 2024 at 12:51 am

    Despite having a SUPER RARE INCURABLE disease of MYASTHENIA GRAVIS, I am in REMISSION and fairly stable now, since I escaped from my fifth hospital on BLACK FRIDAY 11-27-2020. For eight months, not a single doctor could diagnose or even come close to guessing my MYASTHENIA GRAVIS illness. I was finally finally diagnosed by a third floor nurse at the second of five hospitals, who recognized my MG symptoms, from a couple other MG patients that she had met previously. They say that most people get stressed and depressed when they find out that they have MG. I was just THRILLED … after 8 months of MG CLUELESS doctors and all the mistakes they made … they gave me 3 pneumonias at once, a cath, a trach, a peg, a CODE RED, a collapsed right lung, MORPHINE, FENTANYL, TOBRAMYCIN (that gave me 100% hearing loss for 4 months), a overdose of SEDATIVES for MRI Tests (the CODE RED), and large doses of PREDNISONE that gave me MEDICALLY INDUCED DIABETES II and ONSET INSOMNIA.

    BUT I now was THRILLED as I finally had a name for my disease MG, and the diagnosing nurse talked her supervisors into getting me a NEURO-CONSULT, 6 AChR tests THYMUS X rays and a treatment, so I have been GOOGLING and ZOOMING MG ever since.

    My GO-TO stress reliever is to GO SLUMMING. Pick a day or two each week and have a

    “FU*K IT DAY”. Set aside a day to do something you enjoy … sleep in all day, go to a movie/live show, ride a horse, go ice skating, sing in a church choir, eat out, or volunteer somewhere. IGNORE that you have MYASTHENIA GRAVIS, a fatal disease with countless pricey meds (5500 MGs daily) and 6 or 7 specialty doctors/appointments, and countless piles of medical papers on your kitchen table, along with appointment calendars, and bills.

    Because the doctors were so stupid and MG clueless, I had 100% HEARING and VOICE LOSS for 4 months plus … and my fingers and legs were hopelessly weak, so once I was out of the fifth hospital, I disappeared and went “SLUMMING”, for a few hours each week. So I went to the nearby MESA COMMUNITY COLLEGE Music Department and signed up for two voice classes to restore my voice (after my throat was slit and trached), and later I added a Theatre Department Costume Lab class and have been rehabbing my fingers too, hand and machine sewing, as well as acquiring new friendships, seeing the costumes I sewed onstage in musicals, and getting course grade credit (dad’s parents owned a Tailor shop in Marquette … so us 7 kids could sew early in life) Because I am old enough now .. I get the SENIOR TUITION DISCOUNT RATE of $42 to $48 per credit hour for a whole semester of ESCAPING from the MEDICAL WORLD/APPOINTMENTS/TESTS, … and just REHABBING my BODY, FINGERS, and a SUPERDRY SORE THROAT/VOICE (that was not allowed to eat or drink ANYTHING for over 3 months) in my first three hospitals ((ENTERIC THROAT & PEG TUBE HOSE “Nourishment” … that filled my right lung instead three times)). So just STEP AWAY from reality … and forget that you inherited a super rare neuro-muscular disease gene from your German grandmother who died of a similar LUPUS disease, before you were born. I was finally able to “BE ME AGAIN” … by forgetting … for a day … that I was ever sick at all. I am currently still in REMISSION from MG and medically induced DIABETES II, thanks to INTELLIGENT doctors, who I found to replace the MG CLUELESS losers.

    I am still on my original doses of CELLCEPT and MESTINON, that they started, once I was found to be HORRIDLY SERO-POSITIVE, and my replacement NEUROLOGIST KILLED the PREDNISONE … so my A1C scores really dumped … so they stopped shooting me up with double doses of several LANTUS products. Just GIVE your MG and EVERYONE else the”finger” and just escape for a while from REALITY and go SLUMMING … it so helps your mental health.

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