[Diana L Ramsey]

What about one-sided facial spasms?

[Diana L Ramsey]

I had my first (5 day) infusion about three weeks ago. My veins are challenging so it took a bunch of sticks to get things going. The expert IV nurses used the outside of my forearm, which I never would have thought would work. I drank an extra 64 oz of water the two days prior to the IV, the day of, and 2 days after. My only side effects were fatigue (I slept for hour after the treatment) and headaches. I’ve had probably 8 more headaches since the infusion. I’ll be doing a 2 day infusion each month. For those on Facebook, there is a superior site, IVIG and SCIG Education and Discussion, managed by a nurse with over 40 years experience with infusions. The guidelines are right on target. I wish you all well!!

[Diana L Ramsey]

I’d like to know more about what it means to be seronegative.

[Diana L Ramsey]

My cardiologist suggested I see an MG specialist who sent me to a neuro-opthamologist for a diagnosis, after testing sero-negative. I have two different kinds of double vision so I’ve been dealing with it for years. One kind of the double vision can be corrected with prism glasses, the MG kind, cannot. I have mild MG symptoms, and sometimes question if this is the correct diagnosis. The meds have nasty side-effects and I see that people on meds still struggle with bothersome symptoms.