Cynthia Green
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Weight gain, skin, initially stomach issues, water retention . No cataracts or bone loss.
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I was initially given Mestinon to treat my double vision after 5 months of not knowing what I had. I was treated by a Neuro Ophthalmologist at Stanford who quickly recognized Optical MG. It did not work for me. She started me on Prednisone and within 10 days my vision cleared. It was amazing. It has been three years since onset and now I am tapering off Prednisone. 10 mg and 3 mg alternating days. I am very grateful.
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Same here.
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Steve, it must be the season for flares. I was diagnosed 4 years ago. Mestinon is no help. So it has been prednisone. But, it truly felt like a gift. I woke up on April 28th, 2020, with double vision. Six weeks prior we went into Covid lockdown so it took me 6 months before diagnosis and that was at Stanford. I am Sero neg. Long story short, prednisone worked but the taper to no prednisone took 3 1/2 years. My last 2 1/2 mg dose was April 1 st this year. Everything was fine until last Wednesday, I woke up with double vision again. So back to 30 mg and hoping it kicks in soon. Everyone has a story and all different.
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Linda, in my case, we started with 30 mg prednisone and then after 60 days started to taper 20 mg for another 60. When I got to a 10 alternating five I was ok for about a month and then double vision came back. So started back on a 15 /10 for a month with good results and then a much slower taper. I have had good results. Our goal is to get to 10 mg every other day. My Nuero Ophthalmologist will be happy with that low dosage if we can’t do better, and I am too. Hope yours works well.