Forum Replies Created

  • Cynthia Green

    Member
    May 17, 2023 at 9:01 pm in reply to: Treatment for Ocular Myasthenia Gravis

    I was initially given Mestinon to treat my double vision after 5 months of not knowing what I had. I was treated by a Neuro Ophthalmologist at Stanford who quickly recognized Optical MG. It did not work for me. She started me on Prednisone and within 10 days my vision cleared. It was amazing. It has been three years since onset and now I am tapering off Prednisone. 10 mg and 3 mg alternating days. I am very grateful.

     

  • Cynthia Green

    Member
    May 19, 2023 at 2:48 pm in reply to: Treatment for Ocular Myasthenia Gravis

    Linda, in my case, we started with 30 mg prednisone and then after 60 days started to taper 20 mg for another 60. When I got to a 10 alternating five I was ok for about a month and then double vision came back. So started back on a 15 /10 for a month with good results and then a much slower taper. I have had good results. Our goal is to get to 10 mg every other day. My Nuero Ophthalmologist will be happy with that low dosage if we can’t do better, and I am too. Hope yours works well.