[Carol]

I was originally diagnosed with mg with a blood test processed by the mayo clinic.  I was put on mestenon but it gave me severe stomach cramps and was taken off it after 5 days.  Had muscle tests and muscle biopsy all negative.  Repeated blood test at local hospital and it came back negative.  My doctor said she could not do anything for me. My family doctor said it was fibromyalgia.  Went on 2 types of meds for that for 5 weeks with no change in symptoms.  Had mucke tiredness so bad i had trouble funtioning at times.  Pain all over my body to the point i couldnt take it any longer.  I happened upon prednisone in my meds and they helped when i first started with the muscle tiredness and minor pain so i thought what do i have to lose.  Took 20 mgs a day.  10 in the morning and 10 at nite and i felt much better. Still some pain but tolerable. Muscle tiredness keeps getting worse but i can function.  Weaned down to 10 mgs a day and pain is still ok.  I think i have seronegative mg.  My question is this.  I live in Pa.  I am thinking about going out to the Mayo clinic to see if they can tell me what i really have.  Has anyone gone there for evaluation and what did u think of the clinic.

[Carol]

I was originally diagnosed with mg with a blood test processed by the mayo clinic.  I was put on mestenon but it gave me severe stomach cramps and was taken off it after 5 days.  Had muscle tests and muscle biopsy all negative.  Repeated blood test at local hospital and it came back negative.  My doctor said she could not do anything for me. My family doctor said it was fibromyalgia.  Went on 2 types of meds for that for 5 weeks with no change in symptoms.  Had mucke tiredness so bad i had trouble funtioning at times.  Pain all over my body to the point i couldnt take it any longer.  I happened upon prednisone in my meds and they helped when i first started with the muscle tiredness and minor pain so i thought what do i have to lose.  Took 20 mgs a day.  10 in the morning and 10 at nite and i felt much better. Still some pain but tolerable. Muscle tiredness keeps getting worse but i can function.  Weaned down to 10 mgs a day and pain is still ok.  I think i have seronegative mg.  My question is this.  I live in Pa.  I am thinking about going out to the Mayo clinic to see if they can tell me what i really have.  Has anyone gone there for evaluation and what did u think of the clinic.