[Teri]

I am sorry that you are experience such. I am not sure what a “high does of IVIG” means, nor if/how it impacts you, ie. are these symptoms during/after IVIG? At any rate, I love my NeuroMuscular because she is leading edge in research and her treatment for me is the exact opposite and very successful. High doses of Mestinon can have bad side effects and her research indicates that low doses are more effective in that they work on the body more similar to a homeopathic action. I am on 30 mg 4 x day and it has worked wonders for me without side effects. I am on IVIG for CVID and at the highest level I can be on for my weight, as IVIG is by weight as well as by the blood labs. So I get 40 gr Gammagard IVIG once every 2 weeks which restores my most of my IGX levels to within the normal range with the exception of IGA, which is still quite low. While my weight would allow an increase in the dosing, my labs do not in that my IGG is just a bit over the top of the normal range. So many factors must be reviewed in my opinion. My Doctor is Charlatha Nagar out of the Chicago & Glenview area and she is a presenter requested by the MG Assoc to present in their webinars, so qualified and vetted by them. Hope this helps.