Forum Replies Created

  • Beckie

    Member
    September 13, 2024 at 4:29 pm in reply to: IVIG

    I started IVIG in 1996 monthly until 2009 when I went to IgG subcutaneous. I now inject Hizentra weekly. Itโ€™s been a game changer. I infuse myself at home, can even travel with it and it only takes about 2 and a half hours each week. I do it in the evening watching TV. Without the IgG infusions, Iโ€™m much weaker when I tried to get off IVIG before switching to subcutaneous injections, I felt very weak and ill. So itโ€™s been 15 years now on sub cue and I like it.

  • Beckie

    Member
    July 26, 2024 at 2:54 pm in reply to: Huperzine-A

    The reason youโ€™re feeling better and the reason Huperzine A works is that it is an antiacetylcholinesterase and works just like Mestinon pyridiostigmine to free up the amount of acetylcholine available for your muscles to function. Huperzine A is NOT a cure nor does it alter your immune system It simply frees up the acetylcholine in the neuromuscular junction so the nerve can send a message to trigger the muscle. It is a natural product made from a fern and available over the counter without a prescription.its benefit is that it seems to be less harsh on the gut. And cheaper than Mestinon.