BBB
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No I have had no repeat tests. It has never been mentioned.
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I was diagnosed in 2022 with LRP4. I am my neurologist first patient with this antibody. I have been on IVG since diagnosed. It really helps me. I’m now 75. I’ve had to get a port. IVG is rough on your veins I would suggest getting one. Headache is common which I’ve had. Going to try Periactin instead of Benadryl. I really feel good most of the time. I also had bulbar symptoms. If you have any other questions feel free to ask.
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I’m similar to you in that in June of 2022 I pulled to a stop at a road intersecting another the angle was to the right where you had to turn sharply to see if cars were coming from the right when I looked back for traffic from the left each car had 2 on top of it I had to close an eye to see only one. That kept repeating so I went to an eye doctor who told me my Perscription was over treating my astigmatism too much and gave me a new script. That didn’t work either. Then the journey started.
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I’ve been on IVG since 5/23. It does work for me. My doctor has not mentioned any other treatments. I think we are very limited in what we will have because there are no clinical trials due to there being so few of us. I started watching MG conferences on YouTube to learn more but stopped because maybe they will mention it but that’s it. One doctor said I’ve never had a patient with this and that’s it. I did get a bad headache a couple of times but it went away.