[Mary Campbell]

Hi

I am zero negative diagnosed with a positive single fiber EMG and I have several other diseases. I have rheumatoid arthritis, celiac disease, Reynards phenomenon, and interstitial cystitis. It took me a good amount of time to get diagnosed about 3 years but my MG started in my eye muscles and it was not until the disease progressed from vision issues to droopy eyes and face that I was diagnosed. I ended up figuring it out myself by way of looking for other autoimmune diseases that could fit my symptoms and then had the tests to prove the diagnosis. Most of the doctors I went to even though they knew I had several other autoimmune diseases did not think I had MG because my blood work came back negative. As soon as I was given Mestinon I had huge symptom relief and then about a year after my thymectomy I was about 60% better and able to reduce my prednisone from 20mg down to 5mg. I have been on 5mg ever since about 5 years now and I still have to take Mestinon every 4 hours but with this my life is very managed and I am able to work and do small amounts of exercise. Keep going until he gets diagnosed and a thymectomy it was huge for managing my symptoms on less prednisone. Good luck to you!

 

[Mary Campbell]

Hi!
I am seronegative and I was diagnosed through single fiber EMG. I am in a Facebook group for Seronegative MG you should join as there are several thousand members on there. I was so thankful to have their support when diagnosed about 6 years ago.