• MG and Stiff Person

    Posted by Jennifer Thompson on September 25, 2024 at 3:10 pm

    Good Afternoon,

    I was recently diagnosed with Stiff Person Syndrome along with myasthenia which I was diagnosed 2 years ago. Anyone else out there experience this? They are both rare and I am thankful to know now why I am having horrific stiffness and spasms that landed me 29 days in the hospital. But to have both is so rare even doctors are at a loss and the treatment for SPS causes issue with the Myasthenia. I am hoping to make it to Colorado to see a specialist that sees people with both.

    It has been a road to say the least. I can’t even go into detail right now with my experience but the hospital has been my second home :(.

    I just didn’t know if maybe any of the few diagnosed with both maybe on here?

    Thank you,

    Jen

    Jennifer Thompson replied 8 months, 3 weeks ago 1 Member · 0 Replies
  • 0 Replies

Sorry, there were no replies found.

Log in to reply.