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MG and Stiff Person
Good Afternoon,
I was recently diagnosed with Stiff Person Syndrome along with myasthenia which I was diagnosed 2 years ago. Anyone else out there experience this? They are both rare and I am thankful to know now why I am having horrific stiffness and spasms that landed me 29 days in the hospital. But to have both is so rare even doctors are at a loss and the treatment for SPS causes issue with the Myasthenia. I am hoping to make it to Colorado to see a specialist that sees people with both.
It has been a road to say the least. I can’t even go into detail right now with my experience but the hospital has been my second home :(.
I just didn’t know if maybe any of the few diagnosed with both maybe on here?
Thank you,
Jen
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