[John]

I use a low-tech stainless steel chainlink Medical ID wrist-band with name plate with my Name, DOB, Myasthenia Gravis, and Emergency contact phone (my wife who also is an RN). Plus, I also wear an Apple Watch and have an iPhone which both have important Medical Information accessible to emergency personnel on the Apple watch and iPhone for Emergency Paramedics/Ambulance, ER, etc., including “Myasthenia Gravis”, Medications list, and Physician contacts. My Medical Information also advises the ER, etc., to check for MG contraindicated medications that I should not have to avoid a drug-induced Myasthenia Crisis.

[Mami]

Hi. I also used Lifeid for a while. Now I’m using a smartwatch. It’s a big difference. Not only keeps me in touch with emergency assistance, it also holds all the important information regarding my health issues, medications and contacts. It works perfectly for me. It will work for you too. There’s always something better out there.

[Leigh]

Thank you for your reply. Yes many other options now. My older model Apple Watch finally died. I wasn’t using it as much as when I was working so I didn’t replace it but now I may reconsider.

[Leigh]

Thank you for replying! After doing some more research that’s what I am planning to do too. From what I’ve read EMS would not scan the QR anyway for many reasons that all make sense.

[John]

Here is the basic Medical alert wrist chain. It is customizeable with needed information engraved.

https://www.amazon.com/dp/B085RND9W7/ref=sspa_dk_detail_5?pd_rd_i=B085RND9W7&pd_rd_w=JDjJr&content-id=amzn1.sym.c4606765-78ec-444e-9319-716ceb6c5a61&pf_rd_p=c4606765-78ec-444e-9319-716ceb6c5a61&pf_rd_r=6KTSKR170332SM9KFYK0&pd_rd_wg=qOR2h&pd_rd_r=71d23da1-6112-4159-96a3-9ff573f69f60&s=jewelry&sp_csd=d2lkZ2V0TmFtZT1zcF9kZXRhaWxfdGhlbWF0aWM&th=1&psc=1

[Leigh]

Thank you John! I used to think just having MG on a bracelet was not enough because there is so much more to know. I have realized a lot of ER physicians have no clue how to treat. I have had severe moments of not being able to talk or walk but was not alone at the time. I am realizing it is better to have a bracelet listing the diagnosis than nothing at all in an emergency. I appreciate your responses.

[imbrew1]

Try this site out: https://www.americanmedical-id.com/

Might as well get something stylish

🙂

[Leigh]

Thank you!

[Douglas F Young]

Patients who are being treated with Soliris or Ultomiris should be sure that their medical alert information includes advice to caregivers of their increased risk of meningitis.

[Marvin Yudenfreund]

I have worn a Medic Alert bracelet for 40+ years. It has my id. number, 1-800 phone number, and info about my MG, type 1 diabetes, blood type engraved on its back. It’s available in stainless steel, silver, gold, and there’s an annual charge unless you joined back in antiquity. Check out their website.

[Mama]

I have Bay Alarm Medical.

It was ranked #1. I wear it around my neck. No matter where I am, I can contact someone. It also has a fall alert.

[MikeS]

I tried several bracelet brands and found the Medical Alert ID Bracelet Cuff, 316L Stainless Steel, by Dolceoro to be the best overall for many reasons. It allows up to 12 lines of info on both the inside and outside. Mike

[Leigh]

Wow I haven’t seen a bracelet that allowed for that many lines of engraving. Thank you for sharing.

[George Kesterson]

I have found that a medical alert necklace with the engraving of my conditions works best for me. Just my 2 Cents worth. Hope all are having a great day>

[Craig Moore]

I also use a necklace, it has my MG and Type 1 Diabetes and my wife as emergency contact.

[dj18]

being a former emt i learned a long time ago that alert jewelry can get ripped off in really bad accidents. sometimes it’s never even found. i had a 4″ tattoo put on the inside of my left arm that says, “i have myasthenia gravis” and the teal mg ribbon between the words along with a large red medical star of life on the ribbon. it doesn’t give much info but it is highly visible. i also use a med alert necklace that i found online from australia. it plugs into a usb port and can be read on any device. it uses a simple word program that is easily personalized. it comes on a very visible red ribbon lanyard that says “in case of emergency”. the website is http://www.icemergency.com.au. i love this.

icemergency.com.au

In Case of Emergency ID usb

The In Case of Emergency ID USB has a text file with your emergency contacts phone numbers and medical info. Obvious, robust and inexpensive. Worldwide shipping.

[Leigh]

Thank you for sharing from an emt perspective. I have never seen a usb device like that. That is helpful information. I appreciate it

[Leigh]

Thank you everyone for all of the helpful information you have shared. I know it will be helpful for others too.

[tamj]

These are simple and waterproof so I never take it off

https://www.roadid.com/pages/shop-road-id?_gl=1*uzcelb*_up*MQ..*_gs*MQ..&category=wrist&gclid=Cj0KCQjwytS-BhCKARIsAMGJyzqiQQPiD4dIvzU5yNfSLJg0Z2BQX-IQR1l8W3YV2RVx8G5TPOk977YaAgqgEALw_wcB

roadid.com

Shop ROAD iD

Browse our selection of ROAD iDs with wide customization options. Find Elite, Sport Pin Tuck, Nylon Loop, Stretch IDs and other wearable tech IDs. Shop now!

[farmgirl36]

I have used the Medic Alert bracelet since 2008 when diagnosed with Factor V Leiden – latest update in 2022 with MG diagnosis. I have the QR code stickers on my fridge & in my billfold – gave serious thought to getting a bracelet with the code but decided that anyone could read this code if they scan with a phone & have my medical info (lots of info). I would rather have emergency personnel call the number on bracelet if they have questions about the info in my bracelet. I don’t go away from home without my Medic Alert bracelet.

[Sharon Haw]

I use an Apple Watch and an iPhone. The main reason is because my MG causes me to trip and Apple Watch/iPhone have fall detection which can call for help. Downside is some Emergency Response services don’t have the technology to access the info on them yet to see I have MG so I considered getting a chain Medic Alert bracelet but I don’t like wearing bracelets (I don’t sleep with the watch). It’s also critical to keep the information up to date. Someone on this thread mentioned adding the list of MG cautionary meds in the app, which is a great idea. There are too many lists that include quite rare or minor contraindications. The MGFA list is good.