Myasthenia Gravis News Community Forums Navigating School and Work Have you shifted your life to work with MG?

  • MG Community Member

    Member
    August 8, 2025 at 2:07 pm

    I was diagnosed with MG in 07/2023 at the age of 57 within a professional environment characterized by continuous job reductions. No one really expected me to be able to regain my original job in banking.

    I would even say that this particular position had ceased to exist as tusks and responsibilities would have been changing constantly.

    So my challenge was to fight for my job and to somehow become capable of work again.

    This would include:

    • Intensive Rehab Program to restore a certain
      level of physical and mental abilities
    • Developing the adequate mental strength and self-
      confidence to dare to face up to a rough working atmosphere
    • Get familiar with all relevant labor and social security regulations
    • Get your “troops” together such as worker´s
      council, union member, representative body for disabled employees etc.
    • Apply for the legal status as disabled employee (according
      to German labor law) as it may provide you with certain work protection
      rights.
    • Learn to present and market yourself again

    We all know that MG always holds surprises in store for us. So my illness was also marked by the usual ups and downs and a persistent uncertainty.

    To fit all these requirements and tusks into my difficult and lengthy MG journey sometimes seemed to be like a mission impossible.

    I finally made it back to my job. To be frank, at the age of (almost) 60 this is going to be my last job and it’s more like preserving existential needs rather than career planning.

    Pressure will continue to rise and any lengthy sick leave might bring my job perspective finally to an end.

    Nevertheless it was worth the efforts!

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