• Do you have tinnitus?

    Posted by shawna-barnes on March 22, 2025 at 8:00 am

    Ring Ring – Do you experience ringing in the ears?

     

    What do you do to help alleviate the ringing? 

     

    Does your care team believe it is from MG or is it in addition to your MG?

     

    How does it affect your mental health?

    shawna-barnes replied 3 weeks, 2 days ago 6 Members · 6 Replies
  • 6 Replies
  • Willow

    Member
    April 13, 2025 at 7:59 pm

    Yes and in both ears. Ringing and buzzing is constant in the right ear and comes and goes in the left ear. It started over a year ago. I just went for my first hearing test (age 61) due to the constant ringing in my ears. I was suprised to learn I had hearing loss in both ears. They could not say if it was related to MG. The symptoms started about the time I had a very bad incidence of double vision after a hike which led to the MG diagnosis.

  • mrizzy

    Member
    April 15, 2025 at 2:13 pm

    Yes, both ears. It is so annoying. Unfortunately I keep getting told that there is no cure. The damage that causes it cannot be cured. I’m told having background noise mask sit and takes you mind off it. I came down with MG in 2018, I’m 72 and it seems it is more pronounced now.

  • cincy

    Member
    April 15, 2025 at 4:24 pm

    I’ve had tinnitus for more than 20 years and MG since 2023. I find if I get agitated both my tinnitus and eyes are right there agitated with me. Dead silence makes my ears roar, I sleep with the TV on.

  • izzy

    Member
    April 19, 2025 at 8:45 am

    Yes. Tinnitus drives me crazy! I miss the quiet, seriously. My balance is also a problem. I hit the sides of the doorway jams and probably look drunk?

  • cindylu

    Member
    April 22, 2025 at 3:45 pm

    I found out I had tinnitus about a year before I was diagnosed with MG

  • shawna-barnes

    Member
    April 24, 2025 at 9:30 pm

    I have tinnitus as well. Likely not related to MG but my time in the Army. It affects my left side more than my right. I actually had to ask my nurse the other day if there was a warning siren going off or if it was my tinnitus. It’s obnoxious and annoying for sure.

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