Myasthenia Gravis News Forums Forums Healthcare and Treatments How do I know if I’m with the right Neurologist/Neuro-Specialist? Reply To: How do I know if I’m with the right Neurologist/Neuro-Specialist?

  • Andy Coyne

    Member
    April 11, 2022 at 12:01 pm

    Number 1 attribute is they LISTEN to you. I think a lot of neuro’s only hear what they want to hear! The average neuro will only see 4 cases of MG in their career and if you doctor is young she won’t have seen probably any and is therefore reliant on more experienced doctors or reading clinical papers. They are often divorced from the real world. If I was you I would try to get to a neurologist in a major teaching hospital that sees more than the average . My local hospital is a 1000 bed hospital and so far as I can tell there are only 3 MG patients on the books. What chance is there then for the doctors to gain experience. My particular issue is shortness of breath that gets worse during the day. I have to drive 120 miles each way now but I’m dealing with a professor who has a special interest in MG with breathing issues. Remember it’s your body you are entitled to know what’s going on and particularly what they are writing in your notes. Ask for a copy. Here in the UK you have access to your complete medical records but you have to ask!