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<p style=”text-align: center;”>I’m at the point in my treatment where I don’t know where to go. My first neurologist told me that I was one of the 50% that could be diagnosed with a blood test. Gave me mestonin which fixed my drooping eye for about a day. The eye kept getting worse and worse and I have only been diagnosed as ocular myasthenia. I have weakness in my upper legs and can’t climb stairs without pulling myself up along the railings or I’m exhausted at the top. Eye kept drooping worse and worse. I have three or four prisms in my glasses to keep my vision from being cross-eyed. However when my eyelid closes down to where I see my eyelashes my eye just closes. My doctor would not prescribe anything else basically told me to live with it. I take a path to the right when trying to walk in a straight line and stumble a lot. I got a new neurologist who ran all the standardized tests and found no positive for mg. I have since had an MRI a CAT scan I think it was called a PET scan as well as an EMT on my face and many other blood tests. Really have no answers yet but he did schedule me with a renowned specialist in Richmond. He says he has eliminated most everything which leaves mg left. I’ve been on 20 mcg of prednisone for about a month now and that has made no difference. Over the last two or three months I have found if somebody makes me laugh really hard my droopy right eye closes and my left eye closes and also won’t open voluntarily for about 25 seconds. Starting to scare me quite a bit. I have no answers but at least I have a neurologist who is bent on finding out what is wrong and getting me some solution. My ophthalmologist was going to do surgery on my eyelid but he said he won’t do it until he’s 100% assured that I have myasthenia gravis. Apparently the ice test that they do as a presumptive test has not gone well when I have been there. No solid diagnosis leaves no solid treatment. This has been going on since 2018 or so. Color me frustrated.</p>