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Describe Your Journey With MG in 3 Words
Myasthenia gravis is a unique illness. All of us living with MG have varying illness experiences. I have dealt with frustration, feeling like the odds are stacked against me often, and I have also been very grateful for the lessons MG has taught me young. So I would describe my journey living with MG as illuminating, demanding, and rewarding.
How would you describe your perspective of life with MG in 3 words?
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51 Replies
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1.-Frustration: it was annoying not know what was happening to my body for over 3 months.
2.-Discovery: I had to learn to listen to my body and to be more conscious of my every day habits.
3.-Appreciation: I was pushed to appreciate the little things in life I didn’t have or couldn’t do after myasthenia gravis. I also had to work on my anxiety and for that I’m very grateful.
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Unusual different weird
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Every day different
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Whack-a-mole
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LOL… Absolutely love it! It’s is like whack-a-mole. It keeps popping up and you best it down and it pops up again! Beautifully described
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Yes! Too much like it!
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A consistent deterioration
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Could not describe it any better
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Anxiety
Acceptance
Adaptation
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Numbness
Sadness
Acceptance -
Frustration
Sadness
Pivot
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My words have already been stated, accept I might include stubbornness – meaning not accepting completely the limitations imposed upon me. I try and do as much as I can, as often as I can and not allow MG to totally ruin my quality of life. This may mean rest periods, pain periods, but I want to remain independent for as long as I can. I force myself to be active, even if only for short periods of time and my activity may be reduced or limited. I refuse to allow MG to beat me.
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My thoughts exactly!!!
Thank you for sharing.
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It really sucks.
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ITS MY BODY!
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Ruined my retirement.
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Yes, mine also. Can’t walk much at all.
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My neverending journey
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It still sucks.
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Never ending and sadness.
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Insidiously unique
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Wack-a-Mole. Fits it perfectly.
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Wack-a-Mole. Fits it perfectly.
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Wack-a-Mole. Fits it perfectly.
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Wack-a-Mole. Fits it perfectly.
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Don’t make plans.
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Unexpected
Unpredictable
Uncurable
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Unexpected
Annoying
Unpredictable
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Handle with care. Relatively stable with 60 mg Mestinon 3x a day
and lifestyle/dietary mindfulness.
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Handle with care.
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