Pearl Moffett had a myasthenia crisis at age 48, following a diagnosis of chronic lymphocytic leukemia. (Courtesy of Pearl Moffett) This is Pearl Moffett’s story: My experience with myasthenia gravis (MG) opened my eyes to the suffering that a chronic illness can bring. …
Throughout June, Myasthenia Gravis News is recognizing MG Awareness Month with various stories that represent different perspectives on life with MG that we hope to help inspire and empower our readers. These stories highlight some of the unique challenges of living with MG, as well as stories of hope and inspiration and other topics that help to generate awareness among the MG community. Follow along with the series here or visit us on Facebook or Instagram using the hashtag #MGSpotlight.
Deborah skydives over Longmont, Colorado. (Photos courtesy of Deborah White) This is Deborah White’s story: After several months of sporadic double vision, I started to experience drooping eyelids while on a business trip. A concerned co-worker took me to the emergency room where the physician recommended that I…
(Photos courtesy of Alice Wangui Wambugu) This is Alice Wangui Wambugu’s story: My name is Alice Wangui Wambugu. I was born in Kenya on July 4, 1989. I grew up as a normal child and did not have a lot of major medical issues. When I was in high…
AmiCietta in July 2020. (Photos courtesy of AmiCietta Duche Clarke) This is AmiCietta Duche Clarke’s story: Working in corporate law is not for the fainthearted, especially when you’re fresh out of law school. I didn’t let a myasthenia gravis (MG) diagnosis during my third year of law…
(Photos courtesy of Charles Boyd) This is Charles Boyd’s story: I have had two lives. Before myasthenia gravis (MG) changed everything, I was a hardworking, nonstop kind of guy. I worked a full-time job and I worked hard at a food pantry on my days off. After MG…
Josh with his wife, Keri. (Photos courtesy of Josh Gay) This is Josh Gay’s story: My name is Josh Gay, my wife, Keri, was diagnosed with myasthenia gravis (MG) in 2017, and I’m currently working on building an MG awareness vehicle out of my 1998 Toyota 4Runner. Because…
(Photo courtesy of Tanya Chiu) This is Tanya Chiu’s story: In the beginning of 2022, after two stressful years of COVID-19, I had to make the difficult decision to close my yoga studio. Also, my father in-law passed away and then my mom lost her battle to pancreatic…
(Photo courtesy of Shawna Barnes) This is Shawna Barnes‘ story: While deployed to Iraq in 2010, I began having some weird health issues that started with seizures. Brain fog and tripping episodes followed while I was being medically retired out of the Army. In the spring of 2012,…
Misha Page learned to embrace mindfulness and to change her response to stress after she was diagnosed with myasthenia gravis. (Courtesy of Misha Page) This is Misha Page’s story: It all began when I was diagnosed with a rather fancy sounding, but incredibly debilitating, autoimmune condition called…
International MG Awareness Month begins today and the MG Foundation of America (MGFA) and other organizations are working hard to put myasthenia gravis (MG) on everybody’s radar with a host of events and activities. MGFA is set once again to “Turn Awareness Into Action” with its Dare…
Recent Posts
- Zilbrysq safe, effective in real world for treating generalized MG: Study
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- Doctors say MG doesn’t cause pain, but my body suggests otherwise
- Taking Vyvgart before thymectomy may help improve surgery outcomes
- Finding ways to reduce suffering, even while living with chronic pain