For surviving summer heat, the basics work wonders for me

Heat and cold are some of the most common triggers for flare-ups in people living with chronic illnesses. For me and my myasthenia gravis (MG), summer has always been the toughest season.

Almost all of my breathing difficulties have happened during hot months. Over time, I realized I couldn’t just push through them; I had to build a summer survival routine if I wanted to stay safe and functional.

The first and most important rule I follow is to hydrate. That might sound basic, but I’ve learned that when you live with MG, the basics can make the biggest difference.

To make sure I drink enough, I prepare things I enjoy: iced tea, iced coffee, or even detox water with lemon, cucumber, or mint. Having tasty and refreshing options helps me stay hydrated throughout the day without feeling that it’s a chore.

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My summer tricks to tame MG and heat intolerance

The second part of my strategy is keeping an active social life — but in a way that respects my limits. I try to avoid going out before 4 p.m. to allow temperatures to cool off.

Of course, as you probably know by now, I love good food and coffee breaks! So I plan hangouts around coffee shops and restaurants where I can enjoy myself while staying in comfortable, resting positions. For me, such social outings aren’t just about being with friends; they’re also about giving my body a chance to rest while still feeling included and connected.

Cooling my muscles has also become a lifesaver. To fight fatigue, I keep an ice spray in my bag and use it whenever I start to feel tired. The trick is to not spray directly on the skin, because that can shock your body. Instead, I spray over my clothes, which has a gentle and refreshing effect. And if I don’t have my spray, I head to the nearest bathroom to splash cold water on my arms and face. It’s simple, but it works wonders in helping me recover some strength.

Another discovery that’s changed my endurance — not just in summer, but throughout the year — is massage. I’ve learned how powerful it can be for weak muscles.

While professional massages are great and I try to get them whenever I can, I’ve also learned simple self-massage techniques. On top of that, I invested in a small massage gadget that works perfectly to relax my muscles at home. These small moments of care don’t just ease my physical pain; they also provide mental relief.

Your turn

The truth is, people with MG have different relationships with heat, cold, and other triggers; what works for me might not work exactly the same for you. But the key, I believe, is to keep experimenting. Try new tips, tricks, and routines until you find your own way through. MG doesn’t come with a manual, so we have to write our own.

Living with a chronic illness in the middle of summer isn’t easy. But with hydration, smart social planning, cooling strategies, and regular muscle care, I’ve managed to find a rhythm that works for me. And maybe, just maybe, you can take some of these ideas and make them your own.

Note: Myasthenia Gravis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Myasthenia Gravis News or its parent company, Bionews, and are intended to spark discussion about issues pertaining to myasthenia gravis.