MG gives me a strange connection to changes in the weather

I cry when it rains, get mad when the wind blows too hard, and dance with joy when spring arrives.

I thought for years that these were just part of my emotions and psychology; that maybe I was overly sensitive or simply dramatic. But I’ve realized something deeper lately: Being connected to my body has also made me deeply connected to nature.

Every time it rains, my body reacts before the clouds appear. Even hours before the first drops fall, I can feel the rain coming. Myasthenia gravis (MG) wakes up inside me like a storm. My breathing becomes shallow, my legs grow numb, and my arms suddenly feel like they’re made of lead. I feel a full-body exhaustion that I can’t explain, a warning that rain is on its way. My muscles send me messages before my phone’s weather app even thinks about it.

Unfortunately, I’m not the best weather checker, so I often find myself stuck outside when the symptoms hit, stranded and needing help to make it home.

The rains came, then the crash

That’s what happened last week when I had a session to become a certified trainer, something I’d been looking forward to for months.

I was excited and full of energy that morning, and the class was going perfectly. Then the weather shifted, and my body reacted almost instantly. My neck grew heavy, my arms weakened, and my pen slipped out of my hand. Without even realizing it, tears began to roll down my cheeks.

My body gave up right there in front of everyone the moment the rain arrived.

It wasn’t just a minor fatigue moment. It was a crash. My classmates were shocked. I was mortified. When my taxi arrived, I couldn’t even walk to it. I had to be helped into it, feeling small, fragile, and deeply embarrassed.

I’m still not sure what hurt more — the physical collapse or the emotional exposure. Was it the frustration of not seeing it coming? The shame of being so vulnerable in front of people I barely knew? Or simply the anger of being reminded, once again, that MG doesn’t care about timing, my dreams, or appearances? Probably all of the above.

The meaning of it all

But I try to find meaning in the chaos. And maybe this strange connection I have with the weather isn’t all bad. It does mean I’m in tune with my body, and my body, in its own way, is in tune with the Earth.

It’s a bittersweet kind of romance. When the sky cries, I cry, too. When the wind roars, my nerves tense up. And when spring arrives, I bloom. I get lighter. I breathe easier. I find myself waking up early, walking more, and being more creative. It’s as if myasthenia gravis and I have learned to be in sync with the seasons, even when it’s not on purpose.

Of course, this poetic vision doesn’t erase the frustration of MG. I still need to adapt. I must check the forecast not just to decide what to wear, but as an act of self-care. I must now plan my week around it. If rain is expected, I’ll rest more and meditate when it’s windy because I know the pressure shifts will mess with my balance. And when spring comes, I can let myself be free — take walks, work outside, and savor every moment when my body feels aligned with the world again.

Living with MG is a constant negotiation between control and surrender. I can’t control the weather, and I can’t control my disease, but I can listen. I can adapt.

So maybe this isn’t just about storms or flare-ups. Maybe it’s about learning to see myself as part of nature — unpredictable, sensitive, and beautiful in her own rhythm. I cry when it rains. I breathe when the sun rises. I grow again with spring.

MG might make the weather inside me unpredictable, but it also makes me more alive to every change in the sky.

Note: Myasthenia Gravis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Myasthenia Gravis News or its parent company, Bionews, and are intended to spark discussion about issues pertaining to myasthenia gravis.