-
Craig Whitney replied to the topic Plumber risk in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 2 months, 1 week ago
My gMG and my sweetheart’s health issues have kept both of us pretty much homebound. And we are now in need of a plumber. We are asking those who enter our home to wear a mask, as do we while anyone is here. No one has complained, so far. As was mentioned in a previous post, employers want to keep their workers busy and safe.
-
Craig Whitney replied to the topic Ultomiris (Ravulizumab-Cwvz) FDA-Approved for Generalized MG Patients in the forum Healthcare and Myasthenia Gravis 2 months, 1 week ago
Four months after my diagnosis with gMG in August of 2022, taking Prednisone, Mestinon, and Mycophenolate was not enough to keep my symptoms at bay. In early December, my neurologist ordered 5 plasmapheresis treatments in hospital, and that helped me feel much, much better. In January of 2023, I began Ultomiris infusions. Two infusions, two weeks…[Read more]
-
Craig Whitney replied to the topic Describe the Moment You Were Undiagnosed With MG, but Realized Something Was Seriously Wrong in the forum Healthcare and Myasthenia Gravis 2 months, 3 weeks ago
Hindsight is 20/20 in my case, as seems to be true with other folks who have posted in these forums. Double vision after a couple of days finally forced me to go to the ER, tests showed no stroke, and a (hospitalist) neurologist did the ice bag test. Finally, a diagnosis. Blood tests confirmed it two weeks later. The weeks (months? not sure…[Read more]
-
Craig Whitney became a registered member 3 months, 1 week ago
Hey, Craig! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
I think these articles/stories…[Read more]