Craig Whitney

My gMG and my sweetheart’s health issues have kept both of us pretty much homebound. And we are now in need of a plumber. We are asking those who enter our home to wear a mask, as do we while anyone is here. No one has complained, so far. As was mentioned in a previous post, employers want to keep their workers busy and safe.

Four months after my diagnosis with gMG in August of 2022, taking Prednisone, Mestinon, and Mycophenolate was not enough to keep my symptoms at bay. In early December, my neurologist ordered 5 plasmapheresis treatments in hospital, and that helped me feel much, much better. In January of 2023, I began Ultomiris infusions. Two infusions, two weeks…[Read more]

Hindsight is 20/20 in my case, as seems to be true with other folks who have posted in these forums.  Double vision after a couple of days finally forced me to  go to the ER, tests showed no stroke, and a (hospitalist) neurologist did the ice bag test.  Finally, a diagnosis.  Blood tests confirmed it two weeks later.  The weeks (months? not sure…[Read more]