• Has anyone started the Vyvgart infusions ? Any results ? Thanks 🌻

  • My husband had left eye droopy lid at first , double vision , now both eyes are affected ,, lid drooping , double vision , depth perception affected . Dizzy and nausea . Cannot drive , has to be super careful walking .

  • Tracy O’Connor-McGraw posted a new activity comment 4 months, 2 weeks ago

    Was that the 60 mg. ? And how long did it take for that to work it’s magic ? Thanks Chris .

  • I recently read that Mestinon is only active in your body for four hours and takes an hour for it to work and that it is essential you take it timely when prescribed …how often does everyone take it .

    • When I was at my worst, I took it very precisely at 6, 10, 2, 6 and 10 and really struggled if that varied. Now I’m much better and only take a single dose “early afternoon” with a wide variance in timing.

  • Tracy O’Connor-McGraw posted a new activity comment 4 months, 2 weeks ago

    Hi Jodi , we are currently waiting to be scheduled for a CT scan to look at his Thymus gland for any abnormalities … was your Thymus gland enlarged , or did you have a tumor ? Or did you just take it out and efforts to get better.. I hope this isn’t too personal..

    • They said I had residual matter within the gland and a thickened wall more than they typically experience with MG patients. Not sure what all that means! I went with it because I had the opportunity and hoped it just didn’t do more harm! I’m all open nothing is too personal. Ask away!

  • Tracy O’Connor-McGraw became a registered member 4 months, 2 weeks ago

    • Hello, Tracy! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.

      I am so sorry to hear about…[Read more]

      • Hi Jodi , we are currently waiting to be scheduled for a CT scan to look at his Thymus gland for any abnormalities … was your Thymus gland enlarged , or did you have a tumor ? Or did you just take it out and efforts to get better.. I hope this isn’t too personal..

        • They said I had residual matter within the gland and a thickened wall more than they typically experience with MG patients. Not sure what all that means! I went with it because I had the opportunity and hoped it just didn’t do more harm! I’m all open nothing is too personal. Ask away!

©2022 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or    

Forgot your details?

Create Account