Short Bio |
Hi Group! My name is Vivian. I have had Myasthenia most of my life however it was not diagnosed until 2001. I am sero negative. I have tried several treaments such as Inuran, Mestinon 60 mg, Mestinon 180 mg ER, IVIG, and Homeopathic medication with my first Neurologist. My first and second Neurologist were dreams and spoiled me! After the dreams it has been nightmares. I live in West Texas where Neurologist are few and far between. My neurologist of several years this month told me: “I don’t really treat MG patients” I think you need to go to UT Southwestern to get checked out!” Now you know my story.
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Location |
West Texas in the middle of a cotton field 30 miles from any where!
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How long have you or the person that you are caring for had MG? |
Most of my life
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