Profile

Name

Vivian

Last Name

Rinehart

Nickname

Tinkerbell72

Short Bio

Hi Group! My name is Vivian. I have had Myasthenia most of my life however it was not diagnosed until 2001. I am sero negative. I have tried several treaments such as Inuran, Mestinon 60 mg, Mestinon 180 mg ER, IVIG, and Homeopathic medication with my first Neurologist. My first and second Neurologist were dreams and spoiled me! After the dreams it has been nightmares. I live in West Texas where Neurologist are few and far between. My neurologist of several years this month told me: “I don’t really treat MG patients” I think you need to go to UT Southwestern to get checked out!” Now you know my story.

Year of birth

1952

Gender

Female

Location

West Texas in the middle of a cotton field 30 miles from any where!

Relationship

Patient

How did you hear about us?

Facebook

How long have you or the person that you are caring for had MG?

Most of my life

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