Profile

I have had Mg since I was 14 years old. No one even knew that there was such a thing when my journey started… My mom noticed my fatigue and droopy eyes and became relentless to help her once very active daughter.  Neurologist became my permanent Drs. And Prednisone along with mestinon  became  my everyday regimen for 34 years and counting I am sick and tired ( pun intended) of pain and medicine. Who knew that one’s own body would fight it in such a way. Osteoporosis crept into my life along with hip and leg pain almost everyday for the last 9 years. Ivig gave me meningitis and plasmapheresis was a waste of time and energy for it was unsuccessful to say the least! Along the years I’ve developed other health issues that combat my Mg and makes my days even more trying, However I am blessed with 4 (high risk but normal) children & I even have grandchildren. Thankful beyond belief that Mg isn’t hereditary, but bad luck! I haven’t had a forum such as this until now but I look forward to open discussions with people like myself and maybe even a chance to help and learn! We are here and we’re Not going anywhere!!!