@sawyertcox
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Sawyer replied to the topic Mestinon Side Effects in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 2 days, 10 hours ago
I’m in the same scenario. I live in Southern CA and like my neurogoloist, but unfortunately he doesn’t seem as experienced with MG patients.
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Sawyer replied to the topic Mestinon Side Effects in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 2 days, 12 hours ago
Hi, I appreciate that suggestion. I’m not sure how to go about that route since I have Kaiser, but I would love to try some sort of new treatment options. I was put on Cell Cept 5 months ago and have seen no improvement, so I it looks like I will have to start Rituximab.
Can I ask how you did on the Rituximab? It’s not a drug I look forward to,…[Read more]
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Sawyer replied to the topic Mestinon Side Effects in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 2 days, 12 hours ago
Thank you for your response. I’ve never heard about that before but I will look into that. I’m glad to hear you’re doing well
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Sawyer started the topic Mestinon Side Effects in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 2 days, 13 hours ago
Hello, I am new to this forum and recently joined because I am struggling with my MG right now. For some background, I am 23 years old and have had MG for going on three years now. I am on 10mg of prednisone and a high dose of IVIG monthly. As of a few months ago I started struggling with talking and eating again, and now I feel I am almost back…[Read more]
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Sawyer became a registered member 1 week, 6 days ago
Hello, Sawyer! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support. I was diagnosed similar timeline…[Read more]