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Robert Devine replied to the topic Probiotics for MG in the forum Nutrition, Supplements, and Exercise 4 months, 1 week ago
I cannot help with your probiotic question but it makes sense with the gut brain connection try to google it. I also have ocular and was told by my neurologist the same thing he only has me on mestinon which does help with symptoms but not the disease progression. After doing my own research it became clear that people ocular MG has a lesser…[Read more]
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Robert Devine replied to the topic "Not allowed to switch providers"… has anyone else had this experience? in the forum Healthcare and Myasthenia Gravis 9 months ago
Yes exactly the same thing. They seem to be very resistant to changing doctors within their group. I feel it is more the policy of the clinic not as much with the individual doctors. I’m an RN and have always felt that it is our personal right to choose a physician as they are not all equal in their abilities to treat dispute having similar c…[Read more]
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Robert Devine replied to the topic "Not allowed to switch providers"… has anyone else had this experience? in the forum Healthcare and Myasthenia Gravis 9 months ago
Did this occur at the Cleveland clinic by chance
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Robert Devine replied to the topic Remission?? in the forum Healthcare and Myasthenia Gravis 1 year, 1 month ago
Makes me wonder what else your neurologist doesn’t know ask her/him to look up the definition of remission and remind her you did not say cured.
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Robert Devine became a registered member 1 year, 6 months ago
Hello, Robert! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself with our forum rules in…[Read more]