Profile

Name

Rebecca Terranova

Nickname

rebecca-terranova

Short Bio

I was initially diagnosed with seronegative gMG in 2012 but my first symptoms appeared in the early 1970’s. Despite aggressive treatment with Mestinon SR, CellCept, prednisone/Budesonide, Rituxan, IvIG, & plasmaphereisis, my disease continues to progress. After the antibody test for LRP-4 became available, I officially became triple seronegative. My current regimen includes the standard meds plus plasmaphereisis followed by IvIG. I do experience a short-lived abatement of symptoms.

I would love to hear from other seronegatives out there.

Year of birth

1948

Gender

Female

Location

Veto Beach, FL

Relationship

Patient

How did you hear about us?

MG Website

How long have you or the person that you are caring for had MG?

12 years, symptomatic for >40 years

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