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I was initially diagnosed with seronegative gMG in 2012 but my first symptoms appeared in the early 1970’s. Despite aggressive treatment with Mestinon SR, CellCept, prednisone/Budesonide, Rituxan, IvIG, & plasmaphereisis, my disease continues to progress. After the antibody test for LRP-4 became available, I officially became triple seronegative. My current regimen includes the standard meds plus plasmaphereisis followed by IvIG. I do experience a short-lived abatement of symptoms.
I would love to hear from other seronegatives out there.
|Year of birth||
Veto Beach, FL
|How did you hear about us?||
|How long have you or the person that you are caring for had MG?||
12 years, symptomatic for >40 years