[resilient]

I had a total MG crisis May, 2024 beginning the day following ACDF (anterior cervical dissector fusion) surgery. A week in ICU saved my life but I couldn’t get anywhere near functional in usual Selector & both instant & ER Mestinon. Dr put me on Vyvgart for 7 months. I had many, many side effects and essentially no improvement. Another month passed as we arranged for IVIG. First day’s dose was aborted when I got cardiac symptoms. ER team determined my heart can handle the treatment as long as we irate it slower than normal. I went back for the second day and did fine in slow titration. Yesterday and today I had a second IVIG. I have seen mild improvements and am excited to see what the next weeks bring.

We all are different! I thank God for my husband who is an encouraging helper, and that I have a resilience that has passed many near fatal events in the past 60+ years!