Profile

Name

Robert Manning

Nickname

robert-manning

Short Bio

I came down with MG in 2019.  I was lucky to be diagnosed and confirmed as gMG fairly quickly.  My treatment has included five IVIg treatments, pyridostigmine (which didn’t seem to help), prednisone, and imuran which made me sick so we switched to Cellcept.  I have had two VYVGARD infustions which didn’t seem to have any affect.  We are trying to cut back on the prednisone so I am now taking 2.5 mg every other day.  My main symptom at this time is leg weakness.  My doctor thinks I may just be out of shape.  I am not so sure.

Year of birth

1935

Gender

Male

Location

Garnet Lake, NY

Relationship

Patient

How did you hear about us?

Facebook

How long have you or the person that you are caring for had MG?

3 years

Privacy Policy and Terms of Use

I agree