My MG was diagnosed outpatient, but when I was admitted for the start of infusions I had a respiratory arrest. In the last 7 years or so, I have been on virtually every approved medication and some on {Phase 3 trials). Usually they start out working reasonably but, even the best, will lose efficacy after a while.
The latest med is Imaavy. I understand that I am one of the first. So far I have had only a few doses and it seems to be working well. With most of the other meds, my MG symptoms would return up to a week before the next scheduled infusion. I would have to force a pyridostigmine down and wait for it to take effect, otherwise I couldn’t swallow. Now I do seem to do OK until the next infusion.
I am not aware of any significant side effects yet.