[nannymcv]

I started Vyvgart mid December 2024 and ended mid January 2025. It worked great but I was in bad shape. Couldn’t chew long without giving out, couldn’t talk for long without my voice giving out. I would get so tired, I couldn’t do much of anything. After the first infusion, just about all my symptoms were gone. I went about 2-1/2 months and I was getting some symptom back so the dr ordered another round. I couldn’t see as much difference as the first round but I wasn’t in as bad shape as the first one. I go see my dr on the 22nd of July and he will probably order another round. It works well with me but I’m still on Pyridostigmine 60mg 3x day and prednisone 5mg once a day. I really want to get off of that but Dr said I needed to keep taking it. I was diagnosed with GMG June 2024. Hope this helps.

[nannymcv]

Hi, I’m new also. I was diagnosed with MG first of June 2024. The doctor put me on pyridostigmine three times a day right off. I took that for a while. I had to go to 4 times a day after a couple of months and I could feel I was getting weaker. I developed Covid and Flu A the first of September and had a time getting over that. I was in ICU and then a room altogether for 5 days. My neurologist did plasmapheresis while in the hospital. It took about 3 weeks to get over that. He put me on prednisone with the pyridostigmine. I did ok til about November. I went to another neurologist and he started me on Vyvgart infusions. Within 3 days of my first infusion it was like almost all my symptoms were gone. (I had droopy eyelid, chewing and swallowing problems, holding my head up, problem with laying flat of my back, fatigue, talking, smiling, and probably a few more.) The next three weeks I had the rest of my infusions (4 all together). The last one was January 16, 2025. I have felt great so far. I’m still on pyridostigmine 3 times a day and prednisone 7.5 mg once a day. I’m trying to go down to 5 mg a day. I think Vyvgart is a game changer for me.