@maryann
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Mary Ann replied to the topic Probiotics for MG in the forum Nutrition, Supplements, and Exercise 1 month, 1 week ago
The symptom that caught the MG for me was the ocular connection with droooping eyelids…. but when the doctor started me on Prednisone and the Pyri Rx, my eye lid went back up from geing completely closed down within 48 hurs. The double vision is also less and now almost gone completely. The “pyri” caused tummy upsets, so we have since stopped…[Read more]
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Mary Ann posted an update 1 month, 1 week ago
Question on drug interactions that “unmask” the MG??? I see the list on site, but wondering about Fluticasone Cream USP for dermatology use???
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Mary Ann started the topic List of symptoms to keep track of? Set of 13 somewhere? Can't find it. in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 1 month, 2 weeks ago
In the infusion book, it has a set of 8 things to rate according to severity…but I read of one for 13 but not sure where to find it. I wanted to fill it in before visit doctor this am… Anyone know where on line to find it?
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Mary Ann replied to the topic High Dose Steroids after IVIG? in the forum Healthcare and Myasthenia Gravis 1 month, 3 weeks ago
Thank you!!! Yes!!!! very helpful indeed. I am new patient and will start Vyvgart for 4 weeks soon…. also interesting to realize that the double vision was when the mestinon wore off… I’m taking Pyridostigmine. Is that the same thing??? It really helped the droopy eye lid which was clear closed to open up after about 24 hours. ..but do st…[Read more]
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Mary Ann replied to the topic Myasthenia Gravis' Effect on Singing in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 2 months ago
I find I am too tired to sing….. and my voice is off….. except when I’ve taken the predisone and am feeling “chirpy”… Then I have energy to talk and even sing a bit… 🙂 …. but I wiggle my toes with neuropathy to the music anyway….;) I sing for my enjoyment. 😉
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Mary Ann replied to the topic High Dose Steroids after IVIG? in the forum Healthcare and Myasthenia Gravis 2 months ago
Thanks for that helpful note since I am new at this… though I’m sure I’ve had it a long time but just had crisis which caught it…. I start the infusion that you are doing now in the next week or so… Vyvgart … What is it supposed to actually do??? What signs should I watch for? When I’m tired, my double vision hits… now I realize it…[Read more]
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Mary Ann replied to the topic High Dose Steroids after IVIG? in the forum Healthcare and Myasthenia Gravis 2 months ago
What is IVIG??? I’m new and scheduling for infusions. Is that what you are talking about? What are the infusions supposed to do? My crisis symptoms are subsiding a bit after 12 days of Rx – but finding things I thought were “old age”, that have worsened during this crisis time, so figure probably a part of MG…. But wish there was one doct…[Read more]
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Mary Ann became a registered member 2 months ago
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Hello, Mary Ann! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself…[Read more]
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