@lisemahoney
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Lise replied to the topic Summer Heat & MG in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 1 week, 1 day ago
What about swimming in your pool
? We have a heated pool
But indont know what to to do! We just opened it and the heat of the outside air is already killing me! -
Lise replied to the topic Botox, Fillers, and Cosmetic Procedures With Myasthenia Gravis in the forum Healthcare and Myasthenia Gravis 1 week, 5 days ago
Before I was dialing gott fillers and some Botox. I would never do it now because if they hit a nerve or a muscle it could ruin my face. Also the NP that is to inject me refuses to do it in case of hurting me. She did say fillers aren’t so dangerous
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Lise replied to the topic Managing Prednisone Weight Gain in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 4 months, 1 week ago
I’ve notice I’ve started gaining I’m on 20mg a day
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Lise replied to the topic Probiotics for MG in the forum Nutrition, Supplements, and Exercise 4 months, 1 week ago
This is my treatment plan as of now mestinon 6o mg 3 timer a day I take cellcept 2000 mg a day prednisone 20 mg a day and also go for IVIG treatment on a somewhat frequent basis as of yet 5 day infusion treatments I’ve had 2 since October. Just been given new medication for migraines as the IVIG brings on migraines again hoping it’s not the MG.…[Read more]
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Lise posted a new activity comment 6 months, 2 weeks ago
Please
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Lise posted a new activity comment 6 months, 3 weeks ago
I just was diagnosed and had my first IVIG 5 day treatment in the hospital as I am scheduled for total knee replacement on Monday 11/21. I’m having a hard time getting back on my feet from the IVIG it mad me feel horrible. Just started prednisone and zofran for a couple days. Did anyone else get sick from the first infusion treatment?
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A lot of people experience side effects from IVIG. Slowing the flow rate during treatments and staying very hydrated are often reported to help significantly! Best of luck with your surgery on Monday!!! Make sure the doctors of aware of your IVIG and you are using anesthesia types that will least likely trigger your MG. Let me know if you would…[Read more]
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Please
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https://www.myastheniagravis.org/wp-content/uploads/2021/03/September-2019-drugs-to-avoid.pdf and http://nebula.wsimg.com/903ebe2c701eb4e72e3211dc9fb9064e?AccessKeyId=7F50FBE19A111D19DDAC&disposition=0&alloworigin=1 (my favorite) are wonderful references 🙂 I would contact the office in advance as well as have this printed out with you
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Lise became a registered member 6 months, 3 weeks ago
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Hello, Lise! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
I am sending all my support as…[Read more]
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I just was diagnosed and had my first IVIG 5 day treatment in the hospital as I am scheduled for total knee replacement on Monday 11/21. I’m having a hard time getting back on my feet from the IVIG it mad me feel horrible. Just started prednisone and zofran for a couple days. Did anyone else get sick from the first infusion treatment?
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A lot of people experience side effects from IVIG. Slowing the flow rate during treatments and staying very hydrated are often reported to help significantly! Best of luck with your surgery on Monday!!! Make sure the doctors of aware of your IVIG and you are using anesthesia types that will least likely trigger your MG. Let me know if you would…[Read more]
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Please
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https://www.myastheniagravis.org/wp-content/uploads/2021/03/September-2019-drugs-to-avoid.pdf and http://nebula.wsimg.com/903ebe2c701eb4e72e3211dc9fb9064e?AccessKeyId=7F50FBE19A111D19DDAC&disposition=0&alloworigin=1 (my favorite) are wonderful references 🙂 I would contact the office in advance as well as have this printed out with you
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https://www.myastheniagravis.org/wp-content/uploads/2021/03/September-2019-drugs-to-avoid.pdf and http://nebula.wsimg.com/903ebe2c701eb4e72e3211dc9fb9064e?AccessKeyId=7F50FBE19A111D19DDAC&disposition=0&alloworigin=1 (my favorite) are wonderful references 🙂 I would contact the office in advance as well as have this printed out with you