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Diagnosed 1998.. grateful neurologist suspected MG after I failed carpal tunnel test & neck CT was normal Blood test showed positive acetylcholine receptor antibody..and the journey began. I already had Crohn’s  so not surprisingly another auto immune disease was to dominate my life. Fortunately Crohn’s  has been in remission for 15 years. Consider myself lucky I’ve been able to maintain OK on 30mg. Mestinon every 3 hours. I have sensitivity to steroids & couldn’t take . I chose not to do immuno suppressants or have Thymectomy after much research …long story, personal choice.

I wanted to respond to comments in forum…I’ve been reading since it started. Hence the reason for joining.

My advice if you’ve just been diagnosed  . Find good neurologist who’s treated other MG patients , then get another opinion not for diagnosis but on treatments available . Learn as much about the disease as your comfortable with , understand all options & side effects. See a physical therapist that understands MG . Learn your limitations in am/pm & after activities.

This is a snowflake disease , everyone reacts differently to activities, treatments & medications. Learn what works for you & take control .

As I see it( again a personal choice) you can let MG control your life or you can learn to live within the constraints of your limitations while still living a full life.