Profile

Last Name

Kobylakiewicz

Nickname

Kut

Short Bio

I was diagnosed in December 2023 but had been going back-and-forth to doctors for five years previous to that January I have to go in for slight crisis. I was in for seven days receiving IVIG. IN JUNE, I HAD A COMPLETE KNEE REPLACEMENT WHICH WE COULD NO LONGER PUT A WHILE DID GET THROUGH THE SURGERY RECEIVING IVIG TWO DAYS FIVE HOURS EACH BEFORE THE SURGERY SINCE THEN Iโ€™M HAVING A HARD TIME WITH THE FATIGUE AND Iโ€™VE VYVGART , COMPLETING MY FIFTH CYCLE. Iโ€™M NOT SURE IF THIS IS HELPING ME BUT I MAY BE EXPECTING A LITTLE BIT TOO MUCH. Iโ€™M A 78 YEAR-OLD WOMANWAS IN GOOD HEALTHAND NOW BUY THIS MENTALLY CHALLENGING BECAUSE I WAS A VERY ACTIVE PERSON. MY EYES ARE ALWAYS BLURRED WATCHING TV GOING ON THE COMPUTER TRYING TO DO ANYTHING I FIND I GET UP THAT DULL HEADACHE. ย MY OPHTHALMOLOGIST SAID I MAY HAVE TO ADJUST TO THIS. WE DID DISCUSS THE PRISM AND I DO WEAR A PATCH OVER ONE EYE SOMETIME TO TRY TO GET THROUGH THE DAY. Iโ€™M VERY INTERESTED IN TALKING TO OTHER PATIENTS THAT HAVE THIS AND SEE IF THEY CAN GIVE ME A FEW COPING SKILLS. ย SORRY FOR CANโ€™T READ WHAT Iโ€™M DICTATING RIGHT NOW

 

Age

1946

Gender

Female

Country

New jersey

What best describes you?

Patient

How long have you or the person that you are caring for had MG?

Itโ€™s been nine months since Iโ€™ve been actually diagnosed, but Iโ€™ve seen specialist for five years previous to that