@kreisenweber
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Ken Reisenwweber replied to the topic Let’s Introduce Ourselves! Use 5 Words to Describe You/ Things You Enjoy in the forum Relationships & Social Life with Myasthenia Gravis 2 months, 4 weeks ago
Jesus
Diaconate
Service
Scripture
Family
My MG has severely reduced my capacity to minister and teach. And to travel 5 hours to see my grandchildren. Yet I am at peace, and focus on what I can do and not what I cannot.
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Ken Reisenwweber replied to the topic Soliris (Eculizumab) and MG in the forum Healthcare and Myasthenia Gravis 10 months, 3 weeks ago
I have been on Soliris since September 2021. The initial benefit was fair to good. In May I experienced a major boost in energy and stamina. I am out walking almost every morning. That seemed impossible just a month before. I had also joined Noom, and have lost over 40 pounds. The every two weeks has not been a problem for me. I know from t…[Read more]
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Ken Reisenwweber became a registered member 1 year ago
Hello, Ken! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself with…[Read more]