• Just for information – I have been on mestinon (6/day) and cellcept (5/day) with prednisone (now 5 mg) since 2017. So when I began getting cramps at night several moths ago in my calves, in my toes and in my legs, in my feet, I never gave drug interaction a thought. (Have y’all always had cramping with mestinon/prednison?)

    After much research,…[Read more]

  • Funny, I was drinking moderately no problem. Then one evening before a cruise, went out to celebrate, had a margarita and by next morning, was very weak on way to airport, used wheelchair, etc. Not realizing it was the alcohol, because I had been drinking moderately, I drank a little on the cruise and it really got worse. Couldn’t swallow, lift,…[Read more]

  • I, too, had a setback, more like an exacerbation, that lead to worse symptoms than when I started. Including the ones you mentioned, I couldn’t walk but for short distances, little strength and ended up using a wheel chair on a cruise! The culprit was ALCOHOL, liquor. I no longer drink and I’m as good as ever. I do 5 ~ Pyridostigmine, 5…[Read more]

  • Kenneth Berg became a registered member 2 months ago

    • Hello, Kenneth! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.

      You have certainly had your fair share of…[Read more]

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