Forum Replies Created

  • karolg

    Member
    November 6, 2024 at 11:14 pm in reply to: How old were you when you were first diagnosed?

    I was 23 when I was diagnosed I’m now 24

  • karolg

    Member
    October 11, 2024 at 4:37 pm in reply to: Does Myasthenia gravis cause a loss of your independence?

    Hello,

    Today is my 24 birthday and I was diagnosed with MG 6 months ago. My life has not been the same since my diagnosis, I was a completely independent person and now I live at home with my parents. I cannot go anywhere on my own because my muscle weakness is so severe. Back in July in the dead of summer my legs completely collapsed, I fell, and scraped the whole right side of my face; I was in the ICU for a week and was on IVIG. I tested positive for AChR and got a CT scan of my chest where the doctor found my abnormal thymus gland. I’m currently waiting for the date for the thymectomy. This whole journey and diagnosis has been so hard and stressful for me to cope with. I feel like my independence was taken away from me, if anyone has any advice or tips on how to cope with this I would appreciate it 🙂

    -Karol

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