J Schafer replied to the topic Struggles You Experience as a Partner to Someone With MG in the forum Caregivers, Family Members, and Partners of Those with Myasthenia Gravis 1 year, 4 months ago
A little over 3 years ago, my husband began experiencing problems swallowing and speaking clearly. There were some days when he could barely eat. I had to change meal preparation to allow only food that was very soft or liquid. Over the course of 3 months he lost 60 pounds. He also stopped talking unless he absolutely had to, because it was…[Read more]
J Schafer became a registered member 1 year, 4 months ago
Hello, J! It is great you are here and learning about this disease to help your husband. Did you experience that diagnosis period with him? If so, how was that experience for you?
Did a doctor recommend the Hizentra, or did you decide to try it upon your research and decision? I just don’t hear of it often mentioned on the site and would love to…[Read more]