Forum Replies Created

  • jeri

    Member
    May 13, 2025 at 6:20 pm in reply to: What dose of Mestinon (Pyridostigmine) and how often has worked well for your body?

    180mg ER 2x daily

  • jeri

    Member
    April 9, 2025 at 7:22 am in reply to: Have you ever been to an MG Conference?

    Does anyone have information on the next MG Conference? I would like to attend.

  • jeri

    Member
    December 4, 2024 at 11:06 am in reply to: Looking for Mestinon 180 ER

    Have you tried the Canadian pharmacies? I paid $194 for a 90 day supply. I still waiting to receive them due to the Canadian Postal Service strike.

  • jeri

    Member
    December 2, 2024 at 8:37 pm in reply to: Looking for Mestinon 180 ER

    Thanks David. I will check them out.

  • jeri

    Member
    May 13, 2025 at 5:57 pm in reply to: can’t sleep

    I started 1GM 2x daily of CellCept in Nov 2024. In Feb 2025 I got a terrible rash on my hands which continued to my legs (front only). My dermatologist said it was due to the CellCept. He said CellCept causes any sun damage or pre-cancers to the surface in form of a rash. I ran out of my CC and backed down to 500mg 2x daily. The rash subsided and is now healing. I’m not sure if this could be your issue, but it was strange how I just stumbled on this relief measure. My Neuro was even surprised. Best wishes to all my MG buddies!

  • jeri

    Member
    December 13, 2024 at 5:29 pm in reply to: How has living with Myasthenia gravis impacted your comfort zone?

    Hi Robert – Thank you for your response. May I ask how long it took you to level off with the generic Mestinon, CellCept and IVG? I am struggling with MG symptoms and hoping this combo will help me level off.

  • jeri

    Member
    December 4, 2024 at 11:10 am in reply to: Looking for Mestinon 180 ER

    👍

  • jeri

    Member
    December 4, 2024 at 11:08 am in reply to: Looking for Mestinon 180 ER

    Thanks Modesto. I will check them out too.

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