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I started my journey with MG on August 1, 2018. Since then, I have literally gone the most unlikely route of MG. I didn’t start small, but with full onset. Within the 1st week I was almost paralyzed in bed for most of the day, struggling to breathe and only able to drink smoothies because I was too weak to chew. Onset literally started backwards. Day one was my feet. And it went up from there. It took over a year before I even noticed any face slumping. And, once on Mestinon, I didn’t have any breathing problems until last year after an under informed Neurologist took me off of all of my meds, insisting my condition was all in my head. Yes, I’m also one of those rare types whose immune system has always been overly reactive. So my symptoms got worse than they’ve ever been and harder to control as a result. Technically, I’m on Neurologist No. 5. Though, I only saw No. 4 one time. Due to something in my charts since seeing Neurologist No. 3 – the one who took me off of my meds – I get a sidewards glance from any new physician I see. They treat me like I’m either a hypochondriac or am going to exaggerate. Regardless, even though that doctor was proven wrong, I’ve been blacklisted.