Profile

Diagnosed with Generalized MG Oct. 2013, Started taking 650 mg Mestinon and it helped some. Thymectomy  Jan.-2014 ,Found Cancer in lymph node when removing thymus. Did Radiation 6 weeks. Had a MG crises Apr.-2014. Week in hospital doing IVIG. Symptoms got slowly better and the MG went into remission for 2 years. Symptoms (double vision, weakness in arms, legs, lungs, jaw, hands )slowly reappeared starting March-2019, Started IVIG and Mestinon SR , it did not help much. Started Soliris Sept.2019. The Soliris did a lot of good hardly any side effects. Had a relapse in Nov 2020 started taking Prednisone and more Mestinon SR got better again. Sept.2021 still taking Soliris, Ivig,  MestinonSR, off and on the prednisone. I walk 2 mile everyday. My symptoms are up and down but I can function pretty well.