[hemby]

I’m here for my 69 year old husband that has the disease. He’s terrified because in all the 23 years we’ve been together, he never once went to a doctor and had never had blood drawn. He’s terrified of needles and turns white just talking about them. About three months ago his eyes started drooping very low. I had no clue what to do so I took him to eye/ear/throat specialist. Luckily the doctor was familiar with MG and had him get an Xray of chest and had blood drawn that did test positive for the antibodies. He said the Thymus looked normal but they he wasn’t an expert on MG. I called around our area for a specialist and couldn’t get an appoint until 3/27. So in the meantime, here we still wait to see the Nero specialist. My husband has now lost 44 lbs. because he can’t swallow 95% of the time and then he has the breathing issue as well about every other day. So far he’s been able to get thru it in about 2 minutes or so, but haven’t had to take him to ER yet. I’ve read everything I can get my hands on about the disease and the forums online have been very helpful. Thanks so much for this forum as I’m at a loss of what to do to help him.

[hemby]

Thank God, his appoint is in 7 days with the Nero doctor. If he gets any worse, yes I’ll call 911, but so far he’s been able to get over a “spell” in two minutes or less. He is terrified of hospitals and the ones close to us are not run professionally. There’s not enough doctors, they have PAs doing most of everything that I’ve seen lately and wait times are crazy. No offence to the PAs, but some patients need experienced specialists, especially for issues like MG.