Profile

I’m 75 and I have Seronegative Myasthenia Gravis which ways first medically noticed by my Sleep Apnea Neurologist who had noticed changes in my eyelids. He referred me to a colleague who specializes in MG, who confirmed diagnosis. Unfortunately there are doctors in the medical center who do not believe in Seronegative MG. I have had surgery on my eyes which was very beneficial. Previous to this people were commenting that I wasn’t smiling as I used to and it looked like I was falling asleep, closing my eyes more frequently. MG has progressed, I use an electric wheelchair when outside the house to get around and a rollator inside. I have fallen several times and broken both wrists and an elbo. I have difficulty speaking so I had to retire early 3 years ago. Weakened diaphragm means I use chest muscles to breathe. Fortunately lungs themselves are in great condition, just the mechanics aren’t. Eating is also tedious. Currently receive IVIG Treatments every 3 weeks and taking steroids and 50mg Azathioprine 3 times a day. I now have type 2 Diabetes and had Arythmiya all my life and was one of the early coronary ablation subjects. Although vaccinated and staying in Isolation I caught Covid-19 and responded to treatment well so I only spent 4 day’s in Neurological Critical Care.