doreen_j
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As with using any suggested med or supplement, always discuss it with your doctor first. 😀
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I have just had exact thing four the last 3 days. That is something that has never happened before and it sure looks weird when I look at my bathroom mirror. It does go away with a dose of pyridostigmine. My usual symptom when I have not taken a dose on time is that my eyes are very painful.
As far as getting diagnosed it sounds like I got lucky. I had been having issues with blurry vision for a while but with the blurriness changing daily, sometimes hourly, it’s kind of hard to get a variable pair of glasses. I had an acute episode of such double vision that I would see two totally separate stop signs (no, I want driving; just and example). I was able to get in with my optometrist the next day and he did tests and imaging that didn’t show anything wrong. He did an urgent referral to a neuro-ophthalmologist. They scheduled me for that week on friday at 4:30 pm so I was really expecting a cursory exam and be sent on my way. But she was very thorough and I was there for well over an hour, first doing a detailed history to look for any clues for what was wrong. Then she put me through A LOT of different tests. I don’t have the usual antibodies but she was still able to diagnose the omg after an MRI, blood tests, and a trial of pyridostigmine. She is very knowledgeable about mg. Any time I send a question through the patient portal she doesn’t just respond to the question, she CALLS me to discuss it even on the evening. I wonder if she is ever not working because she also does shifts at the hospital.
So with all of that, it sounds like, reading posts from others, that I got really lucky!
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Hi! I also usually take the 180 tabs, one in the morning and one in the late afternoon. I have seen some posts commenting on the 180 shortage. What I’m seeing is that some people do not realize that the 180 mg are an extended release dose. So, the 180s should never be broken or split, and the 60 mg tabs are not going to work the same. The 180 is formulated to give an even dose for an extended time (they need to be taken a minimum of 6 hours apart). The 3x60mg is giving you all of your dose that should last for several hours in one dose that will give you a BIG bump of medicine that will last a short time and then you will have a period of time where you are getting nothing. If you are taking 60s instead of 180s they need to be spaced out appropriately. So in my case I space the 60s out and take one every 2.5-3 hours. You can also use some discretion in spacing the 60s. Like if you are going out for something that will take more of your strength, space them out so you can take one shortly before leave (and bring a dose with depending on how long you’ll be gone).
So if you are not spacing them out, please work with your doctor to get the 60s scheduled the best way for you.
In my case the pharmacist had told me to just take 3 of them instead of the 180. But it’s a good thing I read everything I can about a new diagnosis or medication, so I knew not to. I would have been so sick! I can’t take 1×60 without eating or I will feel sick.