

coffeeluver
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coffeeluver
MemberJanuary 15, 2025 at 9:39 am in reply to: Did anyone have ptosis surgery and if so, which kind?LOL… I’m far too vain for glasses and glass crutches! If it wasn’t for vanity, I could just live with my left eye looking different from the right one.
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coffeeluver
MemberJanuary 15, 2025 at 9:15 am in reply to: Did anyone have ptosis surgery and if so, which kind?This sounds similar to my ptosis. Do you know for sure you have myasthenia gravis? I’m skeptical that I actually have it, because I’m sero-negative and was told the single fiber EMG was not valid because of my previous botox. And mestinon does not take away my ptosis. Neither does the low dose of prednisone I’ve been taking for a couple of months now. Mine is also persistent but is definitely at its best when I wake up and worse in the evening. However, I have read that all forms of ptosis (congenital, involutional, etc.) are worse in the evening. I have had ptosis in my left eye for almost 3 years now. For the first 6 months, I used upneeq in that eye every day. Then upneeq started making that eye red and watery with a swollen eyelid. Went to an eye doctor and found out upneeq caused punctate keratitis in my left eye. Even 2 years later, if I use upneeq, my left eye will be very red and swollen looking the next day. Also, the ptosis will be worse the day after using it. I would love to just be able to get a one-time surgery and be done with all of this and not to have to mess with immuno-suppressants. I went to an occuloplastic surgeon who recommended a mullerectomy on both eyes, with more tightening of the muller muscle in the left eye. This is because I have ‘herings law’ compensation in my right eye, so when I use upneeq in the left eye only, the right eye becomes ptotic. Would love to get the surgery, but so scared it will make things worse. Wish there were more studies and research about people with myasthenia gravis and ptosis surgery.