Cindi
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Not being able to hold my head up when I stand or walk. Braces aren’t helpful; my neck hurts all the time.
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Hi Rocky, I hope you are still doing well. I’m 75, and your post prompted me to write. I believe my MG started at age 16 when I started having restless legs. I didn’t know what it was at the time. Through the years, I had a lot of different symptoms, but nothing major. Then, 2 years ago, I got double vision and have prisms in my glasses. Then, in early 2025, my head started dropping. After many doctors, I was finally diagnosed with MG LPR4 antibody. I still cannot hold my head up when standing or walking. I just started on Mestinon and have been on Celcept. The other symptoms I believe I can deal with, but the dropped head is my main obstacle to life right now.