[cburton]

Hi, My name is Chris.

First time writing on this forum, just a brief history on myself. I was diagnosed last September, I was having difficulty breathing and being a heart patient I was quickly to blame my heart as the problem. After several test my heart was eliminated as the problem. A week later I took myself to the hospital and they to couldn’t find anything wrong and was releasing me to go home, I asked to be tested for MG and they said there was no way that I had MG. I told them that I had an aunt back

in 1970 was diagnosed with MG, they told her that she wouldn’t live past her 30’s. She passed in her early 60’s. My brother was diagnosed with MG at the age of 70 and Passed at 75. The hospital pulled me back in and ted me and I was positive for MG at the age of 73. I carry one gene for MG but not the two required. Anyway I was put on Vyvgart 4 weeks on 4 weeks off, on my fourth session and after the second infusion within hours I felt my body shutting down. I finished the last two infusions hoping it would boost my energy back ( didn’t work). I’m currently waiting for the IVIG infusion authorization from my insurance , hoping it will help. But as far as your question

I met a women who I became friends with switched from Vyvgart to Ultomiris a month ago and she said she feels as healthy as a horse.

Best of Luck to you and everyone else who has this dreaded disease.

Chris